Breakthrough T1D: Supporting Ageing with Type 1 Diabetes

Breakthrough T1D is a leading global charity committed to accelerating life-changing breakthroughs to cure, prevent and treat Type 1 Diabetes (T1D). Alongside funding critical research into a cure, we are also deeply invested in improving lives today—through better technology, healthcare access, and emotional and informational support for everyone living with T1D.

Background and Context

One area of growing importance is the experience of ageing with Type 1 Diabetes. With an estimated 70% of people with T1D now over the age of 30, and many living longer than was previously thought possible, understanding the unique needs of this cohort has never been more timely or urgent.

Living with T1D is a complex, 24/7 condition that brings a significant emotional and psychological burden. Studies show people with T1D are twice as likely to experience depression as those without, and the emotional toll can be compounded by ageing, hormonal changes, and other life transitions.

Through our current research, Breakthrough T1D seeks to deepen understanding around:

• Emotional and physical challenges associated with ageing and T1D, including cognitive decline, menopause, polypharmacy, and reduced capacity for self-management.
• Access to and attitudes toward technology and treatment among adults aged 45+, including barriers and unmet needs.
• Support system gaps, especially around key touchpoints such as diagnosis, perimenopause/menopause, and transitioning into later life stages.

Approach

We are conducting a mixed-methods study using surveys, Recollective diaries, focus groups and “chatabouts” to hear directly from people with T1D over 45—including carers and people living with co-morbidities or disabilities. Our cohorts include:

• Women aged 45–55 (peri/menopause)
• Men aged 45–55
• Adults with disabilities and/or co-morbidities
• Retired individuals aged 55+
• Adult children and carers

Early insights show:

• A lack of healthcare provider understanding of T1D management in older adults.
• A deep need for peer-to-peer support to combat loneliness and isolation.
• A desire for access to advanced diabetes tech—such as hybrid closed-loop systems—to maintain independence as people age.
• Frustration with having to ‘fight to be heard’ by healthcare staff and a need for better-informed care across all settings, from hospitals to care homes.

Despite these challenges, there is also strong optimism. Many participants acknowledge how far T1D treatments have advanced and see real potential in new technologies. But they want better preparation and support as they navigate new life stages—particularly when physical or cognitive ability to self-manage begins to decline.

Our Objectives

Create an evidence base to influence NHS and wider healthcare services to improve care for older adults with T1D.
Develop tailored resources that provide practical and emotional support for people aged 45+ living with T1D.
Raise awareness of the psychological and practical impact of ageing with T1D to drive forward more inclusive, responsive care systems.

Breakthrough T1D is proud to be leading the way in highlighting and responding to the real, lived experiences of ageing with T1D. This work builds on our commitment to not only finding a cure, but also ensuring everyone with T1D can live well today—and in the future.